It has long been the case that people with primary progressive multiple sclerosis are the Forgotten relatives of people with relapsing-remitting multiple sclerosis. In the UK, on the NHS, we have no drugs available to sufferers of PPMS governing body (called NICE) last year refused to pay for the drug, ocrelizumab. After negotiations between NHS England and Roche, which manufactures it under the name Ocrevus, the NHS finally bartered the price down to an acceptable level and have just accepted it for PPMS sufferers.
Showing posts with label DMDs. Show all posts
Showing posts with label DMDs. Show all posts
Friday, May 10, 2019
Subscribe to:
Posts (Atom)
My Covid Jap Update - An Overdue Post!
I actually recorded this ages ago but forgot to post it. Hey ho! had both jabs some time back for Covid - Astra Zeneca - but had quite an a...
-
One of the things I am obviously interested in is looking at each of my symptoms of MS and seeing if they, straight after the HSCT treatmen...
-
My multiple sclerosis story started probably some three years ago or so. My first symptoms that I experienced were a lack of sensation in m...
-
Today is the fourth day of chemotherapy and I tell you how I am feeling in the video. Whilst my body is weakening, much of this can be put ...