Willing to Help and Advise, and "Coming back in a Wooden Box"...

I hope they don't mind me saying, but I was contacted recently by someone through Facebook Messenger out of the blue. Her brother-in-law had recently been diagnosed with primary progressive multiple sclerosis and appeared to be in a bit of a spiral downwards in terms of not quite knowing what to do with the oftentimes damning diagnosis. There is no doubt that a diagnosis of PPMS can leave one feeling a little helpless and hopeless. The treatment options really are few and far between…

This brother-in-law was in his 50s, and on the EDSS scale a few points above me. He and his wife were keen to meet me, especially as they lived locally and had read some of my blogs and seen some of my videos, to talk about the option of going to Russia for HSCT.

Back at Home - Reflections on Leaving

Leaving somewhere you have a tried being and where you have spent 30 days is always going to be an interesting psychological phenomenon. The clinic becomes a really important part of your life, as do the people around you: your fellow patients, the nurses, Anastasia, and Dr Fedorenko. 

First and foremost, you are in a safe environment: if there is ever any problem, you merely press a button and there is someone there to help you. As soon as you are out of that clinic, that safety net disappears. Suddenly, everywhere is its risk. And this includes your own home. Here are my initial thoughts on leaving the clinic and coping with life at home:

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