Showing posts with label HSCT. Show all posts
Showing posts with label HSCT. Show all posts

Friday, February 7, 2020

Willing to Help and Advise, and "Coming back in a Wooden Box"...

I hope they don't mind me saying, but I was contacted recently by someone through Facebook Messenger out of the blue. Her brother-in-law had recently been diagnosed with primary progressive multiple sclerosis and appeared to be in a bit of a spiral downwards in terms of not quite knowing what to do with the oftentimes damning diagnosis. There is no doubt that a diagnosis of PPMS can leave one feeling a little helpless and hopeless. The treatment options really are few and far between…

This brother-in-law was in his 50s, and on the EDSS scale a few points above me. He and his wife were keen to meet me, especially as they lived locally and had read some of my blogs and seen some of my videos, to talk about the option of going to Russia for HSCT.

Tuesday, April 16, 2019

A Reminder of my Journey to Russia and getting HSCT

This video is a reminder of my journey to Russia and my decision to take on the treatment of HSCT. As someone with Primary Progressive Multiple Sclerosis, this was a big decision for me and one not taken lightly.

This story takes you through deciding whether to do HSCT at all, and then whether to take it on through the NHS or to go privately to someone like Russia. Hopefully, the video will explain it all:



My Covid Jap Update - An Overdue Post!

 I actually recorded this ages ago but forgot to post it. Hey ho! had both jabs some time back for Covid - Astra Zeneca - but had quite an a...