Finally! NICE Accepts Drug for PPMS

It has long been the case that people with primary progressive multiple sclerosis are the Forgotten relatives of people with relapsing-remitting multiple sclerosis. In the UK, on the NHS, we have no drugs available to sufferers of PPMS governing body (called NICE) last year refused to pay for the drug, ocrelizumab. After negotiations between NHS England and Roche, which manufactures it under the name Ocrevus, the NHS finally bartered the price down to an acceptable level and have just accepted it for PPMS sufferers.

Seeing the NHS neurologist

The nearest neurologist and I could see was in Winchester and, after my initial diagnosis in August, I was able to see him in November. Again, he gave me a physical examination and we talked through my symptoms. He was also able to analyse the MRI scan that I had done privately. He concluded, with my age and the position of my lesions, that I most likely had Primary Progressive Multiple sclerosis.