Finally! NICE Accepts Drug for PPMS

It has long been the case that people with primary progressive multiple sclerosis are the Forgotten relatives of people with relapsing-remitting multiple sclerosis. In the UK, on the NHS, we have no drugs available to sufferers of PPMS governing body (called NICE) last year refused to pay for the drug, ocrelizumab. After negotiations between NHS England and Roche, which manufactures it under the name Ocrevus, the NHS finally bartered the price down to an acceptable level and have just accepted it for PPMS sufferers.

100% Correlation of Glandular Fever/Kissing Disease to MS

It has long been known that glandular fever or the kissing disease, more medically known as Epstein-Barr Virus (EBV), has something very important to do with the development of multiple sclerosis. My MS nurse was recently telling me that an awful lot of effort and money has been put into researching this link. It seems that 100% of people who have had glandular fever (EBV) have developed multiple sclerosis. Obviously, this is only a tiny proportion of people who have contracted glandular fever, but the finding is exceptionally important. What this essentially means is that if we can develop a vaccine for glandular fever, then we can effectively wipe out multiple sclerosis. This is great news! Here is a video that lays out some details:

I'm not sure what the study is referred to here, or who the research it is being interviewed, but I have found a very recent (2019) piece of research that shows that 100% of Cypriot MS sufferers investigated had had EBV:

Out & About Video

Here is the video to accompany my previous post about getting out and about. Hopefully, it is useful to you. If you have any comments or questions, please put them below in the comments section!

Getting Out and About

I suppose it must be coming up to a month since I have returned from Russia. Things are going really well, although some of my recent stats are a little bit up and down. Generally, I feel good about my recovery and very good about my treatment in Russia. It can be easy to get a little complacent and take things for granted. I know that I'm probably taking risks that perhaps I shouldn't do because I feel quite normal in some of my characteristics, both physical and cognitive. (Some of my characteristics are obviously very much still in the realm of multiple sclerosis!).

My Second Blood/Liver/Kidney Tests

Here are the second blood results I have had from blood taken at the beginning of last week (Monday - it's Sunday now). There are some interesting changes that I will talk briefly about.

Discussing My Liver & Kidney Results, & My GP Appointment

Having already shown you my results in the previous post, I thought I would do a video talking about it as well. As I keep saying, I'm really looking forward to comparing my results from the second blood test that I had comma taken yesterday.

It's interesting to note that the only place I am wearing my face masks at the moment is when I go to the doctor's surgery. I'm going to my local convenience store without wearing them (I walk there as it is probably a 6 minute walk and that is part of my exercise regime in walking there and back). I am hopefully going to watch my twin boys play football this weekend where I'll stand with the parents and watch the game without a mask. I think this is a sign of the progress in my recovery as my immunity appears to be only marginally below where it should be. I guess we'll see for sure on my second blood test results.

Anyway, here's the video:

My Blood Results AND My Liver/Kidney Function Results

I told you in previous posts that, when I had my blood tests done, they only tested for my haematology. Because I could only find, on my medical records published online, my blood results and not my liver and kidney function results, I thought that they hadn't tested for them. I sent an email through to my GP and spoke as well to my MS nurse to request that these tests were done. I met with my GP on Monday this week and he told me that the tests had been done but they just hadn't been uploaded online. Well, they are there now. So here are all of my results for you to check out. I will talk about them a little bit at the end.