Update: A setback? Or summer heat?

I thought I would furnish you with another update. It is now the end of June and I returned from Moscow on 10th April. In this time, I have seen remarkable recovery. I believe that my walking and general coordination, as well as my strength, have returned to levels that were better than they were before I had treatment. My recovery has been as good as can have been expected.

2-Month Update

It seems to have been ages since I last did an update. It's now been two months since I have returned from Moscow and my HSCT treatment. Things are going really well and I am recovering along the same trajectory as I was when I last gave an update. I believe I am physically better than I was before I left for my treatment, which is absolutely fantastic. I am cognitively about the same. All things said, I can only take heart from the level of my recovery. My hair looks like it is white or very fair... Here is a video discussing everything:

Third Blood Test Results - Week 5-6

Here are the results to my third blood test. These are a little bit late as I had the test done at the beginning of last week. They came in at about the 5 1/2 to 6 week mark. Broadly speaking, I was happy with the results, although also I felt I could have made a little more progress perhaps. My platelets seem to have gone into abnormal again. All my liver and kidney functions appear to be on point and the only abnormal stats were in my full blood count.

Here is the video that details the results. Let me know what you think in the comments below.

Interview about HSCT on Naked Diner Podcast

Here is an interview I gave the other week for the Naked Diner podcast. It is the third time I have been on, and each time has been great - massive thanks to them.

Excuse the opening expletives - I didn't realise I was on air at that time! And the false finish at the end! Here it is:

White Hair

It's white! White, I  tell you! It's odd and it's probably quite normal - I need to look into it. My hair is slowly growing back, but I think it is doing so in places I didn't properly lose it. My theory is that I lost hair in patches on my face and quite consistently across my head, but I didn't fully lose much of it. Where I shaved my face and had my head shaved, and where I didn't lose the hair, it just stopped growing. Where I lost it, I think it is still absent in the follicles.

One Month+ Update

It's just over a month since I came back from my HSCT treatment for my primary progressive multiple sclerosis, in Moscow. As many of you will know, my treatment went absolutely fantastically, and my recovery has continued that trajectory. I feel really good about everything and I feel really good in and of myself. This, of course, can lead to complacency and can be dangerous giving that my body and immune system may not be ready for normality. 

But I feel normal. 

A Book for You...

This is a nudge to you guys for birthday presents for any kids up to, say, 14/15 for you. You know you want to...

A book that I have written with one of my ex-colleagues called The Curse of the Maya: A Truth-Seekers' Story is now published and available to buy. It was something that I finished, as a project, when I was receiving my treatment in Moscow. It gave me time to finalize some of the details and editing before getting it out.

Details from the Loom site are:

Johnny Pearce and Andy Loneragan are embarking on a project for 9-year-olds through to 13-year-olds or so. In UK terms, this is Year 5 through to Year 7 and beyond. Heck, even adults should enjoy this one. The book fits in within the loose remit of Loom in being fiction from a skeptical or philosophical perspective.

Let’s set the scene of the book.